At Christmas, Al’s Grandma brought two boxes of Ibuprofen with her — 200mg and 400mg. The question was, which was which? Al’s Grandma is elderly, often confused and has problems with her vision. Given that she was nursing a broken thumb at the time, adequate pain relief was necessary, so we explained which was which and how many of each to take, settling the matter. But it niggled at me that the matter wasn’t even slightly settled — as soon as she got home, she’d be straight back to square one: one of these dosages is higher than the other, and I don’t know which.
So this article from Futurity, “Caution, may cause confusion and misuse” has me thinking about why medication directions, both prescription and over-the-counter, are so difficult to follow.
“Half of adults misunderstand common standard drug warnings on prescription labels, putting them at risk for using the medicine incorrectly or even having a life-threatening event.”
The information on medication is overly complex and often difficult to follow. Instructions are misleading, abstract and wording used just because it always has been, even when there is no evidence of its effectiveness:
“A lot of the current warnings were phrased very abstractly and were confusing. For example, we changed ‘For external use only’ to ‘Use only on your skin.’ We moved from the intangible to the concise.”
A similar project was undertaken by a graphic designer for Target in the US in 2005, complete with identifying colour labeling for family members. As far as I’m aware, nothing similar has made it over to UK pharmacies yet.
The photo to the right is the label from some nose drops when I had a sinus infection (let’s skip over who prescribes medication that needs you to hang upside down four times a day to someone with a bad sinus infection). One drop to be “instilled” four times a day for “esven” days, later contradicted with mildly terrifying warning “not to be taken”. The instruction is in small, blurry, badly printed text, with the name of the pharmacy as, or more, prominent than any of the directions.
I take a lot of medications, and there is nothing consistent about them. While they all come in boxes (apart from the odd ear/nose drop) almost all are generics, so there’s often very little packaging difference between one and the other — it’s branding for the generics company, not the medication, so get two from the same company and confusion ensues. If I happen to go to a different pharmacy to pick up my prescription, then I’ll more than likely get a different brand of generics from them than my usual pharmacy, with a different box and different branding. As for the actual pills, they can vary so much between brands that there is no real point in trying to identify them by shape, size or colour.
I’m lucky. I can read without problems, and I have no problem remembering what the GP has told me about my medication (or asking them to repeat it until I have no problem remembering). I can pull out a load of pill boxes, mentally sort them, and remember which ones to take when — when I remember to take them at all, that is. I’m bolshy enough that if a medicine isn’t working as it should I’ll go back to the doctor and whine until they change it. But what if I couldn’t read well? What if I couldn’t remember? What if I’d had a stroke and couldn’t comprehend written language well but lived alone? What if I forgot why I was taking any medication in the first place, let alone what it was or how many to take? What if I was too embarrassed to ask for help? What if I didn’t know where to go for help? At least one, if not all, of these things will happen to me in the course of my life. You too.
So why is labeling so bad here in the UK? Why is there so much variation, odd English and so little help? What would help? If I could, I’d go back to Christmas and make some large colour-coded stickers to label the ibuprofen with. Even if she struggled to read the digit some days, Al’s Grandma would soon learn to associate the pink with the pills she takes two of. Why can’t she walk into a pharmacy and say, “I’m not sure how many of these to take as a standard dose” and have them sticker the packs for her? Why can’t she get large-print, colour-coded labels on her pills, and why can’t the doctor print out a timetable for her detailing which of her prescriptions to take when?* I can Photoshop up a giant pink 2 icon in less than a minute (and potentially print it out and stick it on a box. I’m a grafter, me.), but imagine what could be done for labeling with a bit of research, some user testing and, most importantly, some consistency?
*When thinking about this, I planned a website which luckily already exists: MyMedSchedule. It is US-based, so most UK drugs will have to be laboriously typed in, but I can’t find a UK equivalent.
